Friday, August 16, 2013

Something a Little Different

Just last night, I caught myself mentally complaining about the things I had to get done:  Clean the bathrooms just before heading off to bed, where I’d only have a few hours to sleep before waking up a little before 5 AM to get some freelance work done; knock out a killer workout; get my kids up, fed, dressed and out the door to preschool before heading to my other job, after which I’d need to pick up my kids, play with them, cook dinner, give baths, read books, clean up the house, and head to bed before starting it all over again the next day.  Oh, and I think one of us had a doctor's appointment somewhere in there.


I found myself sighing with the misery of it all…holy shit, I’m just so busy, I can’t possibly fit one more thing into my day, I never get time to just relax and do what I want to do, I just need a break, when will I ever get a damned break? 


I curled up on the couch for about 30 seconds of quiet before my boys began to jump all over me, knees poking me in the stomach, elbows flailing around my head, and squeals and shouts filling my ears.

I heaved myself off the couch with a “Boys, can Mommy just have a second to herself?  One second?” 


It didn’t hurt their feelings; they’ve heard that before.  Although this year will be a bit different because I’m working full-time, over the past 5 years I’ve managed to maintain a part-time work schedule that allowed me to still spend a ton of time with them, and sometimes I do just need a second. 


They resumed their playing, sans Mommy.


I headed over to Facebook to see what my friends were up to.  That’s when I read my friend’s status update.


My sweet friend has been struggling with cancer for almost as long as I’ve known her.  She’s got a high schooler and two younger kids who are about the same ages as my boys.  She’s had a rough couple of weeks; the test results haven’t been good…and goddammit, she’s tired.


She’s not feeling well.  She hasn’t been feeling well for five years, but she never complains about it.  She thanks God every single day of her life that He’s given her another day…no matter how hard that day is. 


She tells us all that she’s blessed to have us in her life, never acknowledging the fact that we’re the blessed ones to have such an inspiration as her to look up to:  She’s the strongest mom we’ve ever met.  We know she’s not feeling well, but she insists on hosting playdates in her backyard for all of us because she knows she has the most fun backyard in town with its pool and trampoline and little play structure complete with slide.  If we say we’re thirsty, she won’t let us get up and get our own glass of water; she will jump up to grab it before we have a chance to. 


Because she wants to be able to do all of the stuff of normal daily life, and she is insistent that she WILL do all of that stuff.


All the while, she’s tired.  And the cancer makes her hurt in ways that we could never dream of hurting.  She hurts in places that we never knew existed.


But she never complains.


This status update was a little different.  She actually complained a little bit, which let us know how badly she was suffering.  Her husband’s birthday was today and all she wanted to do was feel good enough to get to the store and buy him something because he’s one of the sweetest, most supportive, loving husbands and fathers in the world and she wanted him to know that. 


And dammit, she just wanted to play with her kids tonight.  They are so fun and sweet and rambunctious and young…and she just wanted to jump around with them, wrestle them, tickle them, let them knee her in the belly accidentally, let them scream in her ear loudly because they’d gotten caught up in the joy of playing with her.


But she was so fcking tired that she couldn’t.


I thought of my cousin who died from complications of ALS a few years ago.  This horrible disease, one of the most horrible diseases imaginable, works on a person’s muscles, rendering a whole body useless—little by little. It starts with a tingling and works its way through a body.  A person has no idea how long she will be able to move her body or how long it will be before the simple functions that most people hardly give a second thought to will become impossible for her. 


How long will she be able to chew her favorite foods?  Swallow sips of coffee or wine?  Move her mouth in order to say words?




A person with ALS doesn’t know.  All she knows is that every day when she wakes up, another part of her bodily function will be taken from her until, over the course of several months--years?--everything is taken, leaving only her eyes and brain working so that she’s essentially trapped in her own non-functioning body.


How do you think my cousin would have felt if, before she passed away, one morning God said to her—It’s gone.  The ALS is gone.  Get up and go about your daily business. 


What do you think she would have done?


You bet your ass she would have woken up—jumped gladly out of bed before 5 AM if it meant she could move her body freely, without pain, without fatigue.  She’d have attacked that online work happily, every second relishing the fact that not only could her fingers fly across the computer keys as she typed, but those same fingers could once again wrap themselves around that coffee mug and she could gulp down sip after delicious sip without worrying when her throat was going to stop working and she’d never get to drink coffee again. 


She would laugh at herself that she had ever grumbled or complained about having to get up to do her job.  Because holy shit, she CAN do it!  And what else matters?


She would’ve signed off when her time was up, popped in that workout DVD, and started squatting, lifting, and jumping with fervor—joyful fervor.  Thinking to herself—Oh my God, oh my dear God, THANK YOU for allowing me to move my legs.  And my arms—look at them go! 


She hasn’t been able to move her arms and legs in a year—much less use them to get a kickass, awesomely horrible, hurts-so-bad-but-oh-my-God-I-can-DO-it-again! workout in. 


Jillian Michaels is being a hardass this morning, but she will never, EVER bitch about having to get in a good sweat session again.


She’d have woken her kids up when her workout was successfully completed, watching in awe as her strong arms worked perfectly to pick her 2-year-old up out of his crib.  She’d finally had to give up holding him last year when her arms had stopped working; it had been the hardest day of her life when she’d finally realized she just couldn’t do it anymore. 


For the past year, “holding” him has consisted of someone reclining her wheelchair so that they could place her sweet son on her chest and hold him there for her while her arms hung stiffly at her side.  But now…now she can throw him into the air and catch him, kissing his adorable, fat little face.  Or she can just wrap her arms around him, holding him close to her.  Because dammit, she hasn’t been able to do that in months, either.


And when her preschooler wakes up, fuzzy-eyed, and demands a cup of milk?


She won’t even think about inwardly moaning and wondering how in the HELL she’s going to have enough time to get it all done this morning before she has to be at work.  Because that doesn’t matter. 


What suddenly matters to her in this newfound healthy state is that she can walk to him—holy shit, her legs work perfectly; she hadn’t been dreaming!—and she can lean down, still holding her toddler, and plant a fat, sloppy kiss on her preschooler’s cheek before saying, “Do you want some strawberry powder in that milk?”  Because dammit, her hands work! 


They hadn’t been able to fasten a button on her shirt in two years and now suddenly, not only can she hold her preschooler’s adorable little hand on the way down the hall to the kitchen—oh dear God, feel his little fingers grasping her hand as he looks up at her and beams, so glad that Mommy can do this again!—but she can also stand on her tiptoes, retrieve his cup from the cupboard, TAKE OFF THE LID FROM THE NESQUICK, and make her son some mother fcking strawberry milk. 


And oh, how fabulous it feels.


Could you guys remind me of what I had been complaining about?


Seriously, what was I complaining about again?


Because holy shit.


Sometimes I can be so blind.


  1. I need to some perspective sometimes, too. Sadly, there are always others in worse situations, and our mundane complaints are trivial compared to others. An uncharacteristically somber post today, Shay - well done!

    1. TOTALLY stepped out of my comfort zone today, Dana! I was unsure of whether to post or not, but it was on my mind, so I figured, what the hell...

  2. Sometimes it takes things like this to put things into perspective. When I complain (which is far too often) I try to remember that I have it much better than others so I should just shut the fuck up and stop whining.

    1. Allison--it's so funny you should say that, because I was going to title this post, "Just Shut Up," but didn't want people to think I was telling them to shut the hell up when they complain. It was just something I thought to myself as I was mentally complaining about how BUSY I was. :)

  3. Wow. Just, wow. This really made me stop and think. I know everything is relative, but I often find myself with that "woe is me" attitude, and then chastising myself for not realizing how good I have it. Thank you for the reminder! xoxoxo

    1. Aw, Dani, that's so sweet. Thank YOU.

      It's my cousin; as soon as she was diagnosed, I couldn't get her struggles off my mind. She and my close friend are huge inspirations in my life, although I wish they didn't have to be.

  4. Bawling. I have been complaining this week. I have been complaining long and hard and often. When it's not about feeling like there is nofuckingway that I can evereverever get everything done, it's been about the fact that I have paid a babysitter to have fun with my little boy while I go off to work, so jealous that it is the babysitter enjoying the splash fountain and not me. I've been going back and forth about this summer and how my poor kid didn't get much of a vacation (he has extended school services). YOU and THIS and you and your cousin and your friend (and praying for your friend and your cousin's family) made me make a decision right now right now that the week after next - I am NOT working. I am making a summer vacation for Tucker, and I am doing it right. No babysitter. No work. No anything but him and splash fountains, and pizza, and farms, and airplane parks. Nothing else.
    Thank you. Because whattheholyfuckwas I complaining about again? SHUTUP ME. Done.
    Thanks Shay. <3

    1. I just love you, Kristi. Thank you so much for this comment. There are just too many things I want to say and they're all jumping over each other trying to get I'll just leave it at "thank you." <3 right back atcha.

  5. It's amazing how my problems seem insignificant when faced with someone who really has big things going on. Puts a lot into perspective.

  6. Dude. Thanks for that because I hate crying. AND now I have to stop bitching and go hug my kid and make my freaking mammogram appointment. I think we all need to hear that, and that kind of sucks. Because no one should have to feel that kind of pain and suffering, and yet it takes us looking at their lives to realize how blessed we are.
    You are the best. Ever. Momma. And person.

  7. Your post is another reason that I am proud to have been half of the duo that created you and your siblings. And I'm sure your cousin smiles down on you. Keep up the good work. And don't add a stupid reply to my post to spoil the mood, just take the compliment------Dumbass. love Dad

  8. Oh man, you got me on this one. I hate crying in the afternoon. I hate crying, period. My aunt died from ALS and yes, it is a HORRIBLE disease. My mother still can't talk about her sister without weeping, even though she died a very long time ago. It's human nature to take the gift of life for granted. It's human nature to complain. But every once in awhile we need something like this to shake us out of our self induced coma, to wake up and see the blessings all around us. Thanks for sharing this part if your heart with us.

    1. You're always welcome, Marcia, and like I always say--right back atcha. You've moved me with many of your posts!

  9. At first I was thinking how lucky I am not to have to wake up at 5am like you. So imagine how grateful the rest of your post made me feel. That part about holding her son in her wheelchair, wow. You took me there. And as soon as I was done reading, I ran in the bedroom and held my son. Great post.

    1. Thank you so much. That means a lot. It was kind of hard to put myself out there in that way--not because I'm ever afraid of sharing my feelings, b/c I think it's obvious that I overshare, haha, but because I'm not known for writing this type of stuff and I was afraid people would think I'd gone soft. :) But I just felt the need to write it. Thanks again for reading and commenting!